Experience must inform better care

Group leader: Tanyah Cain

Tanyah Cain holds a bachelor’s degree in special education and a master’s degree in psychosocial learning difficulties. She leads the professional group and article series.

The group combines professional articles, critical debate and a confidential experience survey. Research gaps should lead to closer scrutiny of decisions, support and outcomes, rather than dismissal of families’ experiences.

Ten topics — a new debate every Friday

The first article is available now. New topics open on Fridays, starting 16 October. Upcoming titles remain visible, but their links are not available until publication. Earlier articles stay available to new members.

  1. Institutional care

    Available now

  2. Participation — Opens 16/10/2026

    Opens 16/10/2026

  3. Investigations and records — Opens 23/10/2026

    Opens 23/10/2026

  4. Professional judgement — Opens 30/10/2026

    Opens 30/10/2026

  5. Continuity — Opens 06/11/2026

    Opens 06/11/2026

  6. Family contact — Opens 13/11/2026

    Opens 13/11/2026

  7. Complaints and review — Opens 20/11/2026

    Opens 20/11/2026

  8. Cooperation — Opens 27/11/2026

    Opens 27/11/2026

  9. Local variation — Opens 04/12/2026

    Opens 04/12/2026

  10. Language and culture — Opens 11/12/2026

    Opens 11/12/2026

Survey status — not open for responses (Norwegian)

The initial survey is for adults aged 18 or over with their own experience. The previous exploratory questionnaire is being replaced by a membership-only system. New thematic surveys will have at most ten questions, take around five minutes, and allow one editable response per member per topic. This new system is not open yet. The previous questionnaire used a random participant code. Access controls for the new member survey must be verified before it opens. The intended arrangement is for Tanyah to handle individual responses and for the group and board to receive aggregated results. This is an exploratory survey, not a representative national study.